Description

This ERN Rare-Liver webinar, held on 17 September 2024, Dr Maciej Janik, Prof. Ruth De Bruyne, Janne Suykens and Jemma Day discussed how to communicate with adolescents and young adults. Particular focus was made on how the brain of an adolescent is built and what would be the developmentally appropriate expectations. Some practical tools for communicating with young people were given and a discussion with a youth panel took place at the end. 

Faculty

Speakers: 

  • Janne Suykens from Ghent University Hospital
  • Jemma Day from King’s College Hospital 

Chairs:

  • Dr Maciej Janik Medical University of Warsaw
  • Prof. Ruth De Bruyne from Ghent University Hospital

How to communicate with adolescents and young adults

Chairs

Maciej Dr Maciej Janik, Medical University of Warsaw.
Ruth Prof. Ruth De Bruyne is a consultant in Paediatric Gastroenterology and Hepatology at Ghent University Hospital and Associate Professor (Senior Lecturer) in Paediatric Hepatology at Ghent University. She fulfilled her training as specialist registrar in the paediatric liver unit at King’s College Hospital London (2003-2005) and as clinical fellow in paediatric gastroenterology at the Sophia’s Children’s Hospital (Erasmus MC, Rotterdam) (2005-2006). She defended her PhD, entitled “Immunological consequences of liver transplantation in children: making or breaking tolerance” in 2015. She is paediatric board member of the European Reference Network (ERN) Rare-Liver and coordinates the ERN working group on healthcare transition in rare liver diseases. From October 2023 onwards, she obtained a Senior Clinical Investigator Fellowship from the Flemish Scientific Research Foundation (FWO Flanders). She co-coordinates the Flemish Network for Rare Liver Diseases and is actively involved in the optimization of the organizational aspects of healthcare for young patients with rare liver diseases in Flanders.

Speakers

Jemma Day Dr Jemma Day is a chartered clinical psychologist in the UK, and has 13 years’ experience in the assessment and treatment of psychological difficulties in the context of chronic conditions, with a particular interest in young adults. Jemma has worked at various large hospitals in London including King’s College Hospital, Great Ormond Street Hospital, Guys & St Thomas’ Hospital and The Evelina Children’s Hospital. Jemma enjoys conducting research and training, and has published in several peer-reviewed journals and presented at national and international conferences. Her research interests focus on the psychological impact of chronic illness, and treatment adherence. She completed her training at the Institute of Psychiatry, Psychology and Neuroscience (IoPPN), King’s College London.
Janne Janne Suykens is a clinical psychologist at Ghent University Hospital. Her clinical work focusses on liver, kidney and heart patients in the context of transplantation and/or rare diseases. Within this population, she focusses on adolescents and young adults. She is currently involved in the Q.RARE.Li project aimed at improving quality of life for patients with rare liver diseases through structured peer-support. She is an active member of the Transition Working Group within the ERN and guides the Youth panel.

 

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